Autism Society of West Africa!

We've been hard at work over the past few months, working on building West Africa's first ever regional autism conference. This conference will serve as the catalyst for the creation of the Autism Society of West Africa. Delegates from Nigeria, Senegal, Ghana, and Benin are all planning to attend. We're looking forward to an amazing conference and would love to see you there! Details will be posted on our website in the next few weeks, so stay tuned!

In the meantime - save the dates!

April 8-11, 2010 in Accra Ghana!

Hope to see you there...

Pictures Autism Awareness Month events in Ghana...

Artwork, done on Thursday's at AACT, being sold at the parents meeting



Concert in Osu by Joyful Way Incorporated




AACT field trip to the Legon Botanical Gardens



Thank you Milo for your sponsorship!



Auntie Serwah up at the podem during the seminar at the British Council



Excited caregivers during our community awareness walk



The awareness walk, escorted by the local police




This picture speaks for itself!



Dear readers,

April was sure busy, wow! It is amazing to think of all the events that were organized, the people who connected and the awareness that was inspired by the 2010 Autism Awareness Month in Ghana. Starting from the huge benefit concert at the National Conference Center, to the community walk and field trip, to the radio shows and press conference, all in all... it was a success.

My personal favorite was the field trip to the Legon Botanical Gardens with all of the students and caregivers. Metro Mass Transit very kindly gave AACT a bus at a discounted price for the day and so we all could ride together. The bus ride to the gardens was filled with singing, dancing, and drumming (This seems to be a theme here in Ghana. No matter what you are doing, there will always be drumming and dancing. Amazing!). Once there, we played all morning on the playground, drank cups of cold Milo thanks to a donation from Nestle, ate mounds of Jolof rice thanks to a parent donation, took a walk around the lake and then had another bus ride filled with singing. Needless to say, everyone was exhausted at the end of the day.

The second best event of this past month, I think, was the last event: the parents' meeting. Upon arrival, I was skeptical about the turn out. But as the time passed about 10 parents showed up, a few caregivers and then the administration from both AACT and Awaawaa2. The agenda for the meeting was to recap all of the Awareness events, thank those involved, and discuss the future of the students who are now starting to out grow the center. Unbelievably, a parent of one of the older boys arrived to the meeting prepared to start a parents organization. This organization will be responsible for creating an assisted living & vocational training center for young adults with autism. This one parent facilitated the meeting, took down names of dedicated parents, and even planned the date and time for the next meeting! Motivation and initiation, its about time. As Auntie Serwah herself even said, “A new facility for the older children should have been done yesterday.”



As the month of April comes to an end, sadly so does my time here in Ghana. In three weeks, I will be returning to the US. Its hard to believe. This will not be the end of my work with the Global Autism Project though, I am excited to say that I will be co-hosting the Paddle for Autism Awareness this summer with Molly! What a better way to recap my work here than to talk about it cities all over the USA.

I am thankful to have been a part of Autism Awareness Month in Ghana this year and hope that it was just as successful in all other parts of the world. Only 11 more months until Autism Awareness Month 2011... lets start planning to make it even more powerful! Together we can make a difference.

Casey

HAPPY AUTISM AWARENESS MONTH!

Dear Readers,

As some of you may know, April 2nd was World Autism Awareness Day! Hundreds of countries around the world held events on Friday and will continue to throughout the month to raise public awareness about autism.

The events in Ghana started a couple weeks ago with an awareness campaign at the Accra Mall. For three days, AACT administrative staff along with the members of the Chosen Vessel Choir were going to promote a benefit concert being held the following Sunday. Unfortunately, after the first day they were told to leave. I guess the marketing team at the mall had a particular sensitivity to singing.

On Sunday, March 28th, the Chosen Vessels Choir made of all University of Ghana students, put on a spectacular benefit concert. It was held at the International Convention Center and lasted 6 hours!! Performances ranged from skits, solos, preaching, singing, dancing, lots of clapping and a video documentary about AACT. In the end, there were over 1,000 in attendance, each paying 7 cedis for a ticket. After expenses are paid to the performers and staff, it has been said that AACT will receive the rest of the proceeds. Either way, it certainly raised awareness on a huge scale!!



Last week, Auntie Serwah and Nana Akua (Founder and Director of Awaawaa2 - pediatric speech therapy services), were interviewed on various radio stations. On Tuesday morning, when they were on Joy FM, we turned the radio on through the stereo speakers at AACT so everyone could all listen! I suggested that next year we should get a truck with megaphones and drive around town amplifying such radio programs so the entire community is able to hear it. Hey, everyone else in Ghana is doing it.



At the end of the week, I had a meeting with Salma the director of the West African Consultant Network. This is an company that has offered to partnership in the organization of a fundraiser scheduled for the 22nd of April. Essentially it would be a networking event for their staff and clients, while also raising funds for a local cause. I have attended an event like this in the past and it was quite successful. Hopefully we have the same results.









As far as caregiver trainings go... on Friday March 19th I did a training focusing on Howard Gardiner's Multiple Intelligences. To teach this I started with a game that was actually inspired by my mother(thanks mom!). The idea behind the game is memory retention. The caregivers first numbered their papers 1 - 30. For the first ten: they had to listen to 10 words and then write down as many of the words as they could remember. For the second ten: I wrote 10 words down on paper, they were allowed to look at the word for 20 seconds, then once the paper was covered, they were to write down as many as they could remember. Finally for the third ten: I unveiled a tray of 10 items, they were allowed to look and touch the items for 20 seconds, then once the items were covered, they were to write down as many as they could remember. The idea behind this game was to show them that some people work better with auditory memory while others excelled in visual or tactile memory. Obviously all relating back to the different approaches to lesson planning and teaching students with autism. Similar to past weeks, we also played a few team building games such as the human knot.




Overall, I felt like the training was successful. The caregivers seemed engaged. They asked questions, took notes, and requesting for more. All in all, I felt pretty good about it until, a certain administrative staff asked "Why are you even doing these trainings? You know that the caregivers just nod their heads but really do not understand you." Well... I had a hard time with this comment. It wasn't until last night that I found a quote that descibes how I felt about the situation:

"I do not want my house to be walled in on all sides and my windows to be stuffed. I want the cultures of all lands to be blown about my house as freely as possible. But I refuse to be blown off my feet by any of them."
-Mahatma Gandhi


In honor of children with autism around the world and as a member of the Global Autism Project, I will always try my hardest to provide sustainable education to communities affected by autism worldwide. In life there will always be mountains temporarily blocking your path. But this doesn't mean that the other side doesn't exist. Together we can help to change the lives of children with autism. Only together can we get over this mountains, supporting each others positive efforts.




Thank you for reading!
Sincerely,
Casey

After a few weeks of attempting to conduct caregiver trainings, finally I was granted the time. As I have mentioned before, lecture style trainings have not been the most successful so the teaching style had to be adapted. First, we set up “class” outside. This not only created more physical space, it also was much cooler temperature wise and tended to decrease the probability of people falling asleep (yes, this is a valid concern, no matter how entertaining your presentation). Secondly, I have started each training with a 5 minute Brian Gym. Brain Gym is a technique that I learned through Multikids, the other school that I am working at here. It involves deep breathing and body moment (similar to yoga) to get the brain awake and stimulated.

The beginning week I asked, “What is behavior?” To be able to teach or model good behavior, it only make sense to first know what exactly this means. Thanks to the STAR Autism Program, we identified the ABCs of Behavior: the antecedent, the behavior, and the consequence. Then brainstormed examples of this three part series in our daily lives. While discussing, I wrote key points on a white board. Due to the outcomes of past trainings, I felt it was best if I let the caregivers take the initiative to copy down what was being discussed if the desire was there. I, by no means, will force an education on anyone. Although will also be the first to say that with education comes empowerment. Without my prompting, 4 out of the 12 caregivers present came prepared with notebooks and pencils. It was a step in the right direction.

The following weeks we have focused on positive behavior reinforcement, the idea of extinction, and Discrete Trial Training. As some of you know, these are not new concepts at AACT. The caregivers have been taught these ideas over and over again, with little degree of change. Partially due to cultural differences, but also coming back to the teacher. I feel that I have a bit of an advantage conducting trainings at AACT now versus back in July '09. I have spent many months working along side the caregivers and helping with the students. Compared to someone coming in new to Ghana and new to AACT, I have somewhat of a greater understanding of this environment as well as knowing the caregivers on a much more personal level. Therefore, I rely heavily on their participation in these trainings. I pose questions to them, let them role play, and together we brainstorm ideas of how to make concepts, such as positive behavior reinforcement, a regular routine at AACT. Conducted in this way, I feel and hope the information being given is more sustainable.

On top of Brain Gym and the more educational based lessons, I have started to introduce team building games. Stemming off of charades, we have done other activities that involved non-verbal communication, trust, memory and cooperative skills. It is amazing to see people who generally do not show very much emotion and many times are quite “relaxed” by Friday, becoming active, lively, and full of character. Creating an environment that is enjoyable makes learning more conducive. So last Friday we were told that the caregivers must clean the center instead of receiving training and literally one caregiver said to me, “I am disappointed. This is the only place where I can receive an education and today they have taken it away from me,” I was crushed. Yet it also meant that the trainings were having a positive impact.

World Autism Awareness Month events are also coming along well. This week AACT will start its awareness campaign at the Accra Mall. Other events have been added, such as a craft fair on April 10th. This idea came about from an artist that has been recently volunteering on Thursdays. This man not only donates his time to teaching the children once a week, he has also donated many of his beautiful pieces of art for the center to sell.

On a separate note, there was a wonderful thunderstorm last night. So for the first day in months, we did not see the sunshine. It was a nice change from sweating.

Sincerely,
Casey

(My apologies for the lack of pictures in this entry, I promise more next time.)

Wow, is it really the 1st of March? For how slow some things tend to be here in Ghana, my time always goes so quickly!

Friday, the 6 of February was supposed to be the first day of caregiver training at AACT. Even after communicating via email with both Auntie Serwah and Auntie Baaba throughout the week about the training details, there was still a conflict. Upon arrival to AACT, I learned that Auntie Serwah had actually planned to throw herself a belated birthday party. This included music, food and drinks for the entire school day. While it was fun and a kind gesture, it did not create the most effective environment for teaching. Due to this circumstance, the training was rescheduled for the following weeks.

I left AACT that day feeling frustrasted. Frustrated at the lack of communication between administration and volunteers, as well as the lack of attention being given to the students. It was then that it hit me. So many volunteers have come through AACT to do caregivers trainings. So many volunteers have addressed these issues in lecture style classes. Although all of them have some level of positive outcome, the real net gain is small. How do we change this?! It is clear from the long range effect, or lack there of, that these type of teaching may not be the best way to reach everyone. Therefore we, the teachers, must change our teaching style in order to accommodate our “students.”

Instead of a lecture that following Friday we played charades. For anyone who is not familiar, this is a game where you have to act out a specific event, character, or action without using any spoken language. Then your team mates have to guess what you are trying to convey. Not knowing how this was going to turn out, I made about 20 different cards, divided the teams and crossed my fingers. After the first few warm-ups, the caregivers were into it! Not only were they cheering for their teams, they were actually acting with expression.



Once the game was over. The question was posed: “What was the purpose of playing?” Silence. So adapting my question, I asked them to how it felt when their respective teams were unable to guess what the actor was trying to portray. “It was frustrating,” “it was annoying,” “it made them mad not being able to verbally communicate a message.” Exactly.


The majority of the students at AACT have not developed verbal communication skills, nor have they learned any other form of effective communication. It is my hope that the caregivers now have a better understanding of how these children feel everyday of their lives. If nothing else though, the game has now been carried out to an unexpected level. Since that Friday, one specific caregiver has taken it upon himself to set up the game every week. After our lessons, he has run a charades game. Last week he even brought prizes for both the team who won and the team who lost!

Besides charades, there are a few new items to report. First of all, I want to say how proud I am of the caregivers and Auntie Baaba for initiating the use of PECS during their lunch time. Right before the holiday break Auntie Baaba made some pictures of pure water bags, spoons and forks. At first, I was unsure about how effective it was going to be just due to the inconsistency of their use. Although, to my amazement, the caregivers have gotten quite good with this system and the children have really responded. The majority of students will now request these items either verbally or with the pictures! Its a great step towards teaching communication that now needs to be expanded.


Auntie Baaba and Auntie Serwah also decided to change around the classrooms. Where the older students were is now where the primary class is and visa versa. This makes so much difference. It is much less distracting for the young ones and also gives them more space, with direct access to the bathrooms and kitchen.


Planning for Autism Awareness Month is also progressing! The following are the tentative dates and events planned as of last Friday, February 26th with Auntie Baaba and Auntie Serwah:

17th – 19th March - Autism Awareness Table at Accra Mall with Joyful Way Inc.

20th March - Mandatory AACT Parent's Meeting

28th March - Autism Awareness Concert at the National Theater Hosted by Joyful Way Inc.

1st April - Press Conference

2nd April- World Autism Awareness Day

9th April - AACT Community Awareness Walk

17th April - Informational Seminar at British Council

22nd April - Benefit Concert in Osu

24th April - All Parents of Children with Autism Meeting at Multikids

Its going to be a wild month of events!

As always, thank you for reading.
Casey

Its been two weeks back in Ghana and things have picked up right where they left off. Before leaving from the U.S. I had the pleasure of meeting with Prof. Joel Arick, the author of STAR and FACTER autism therapy programs. After explaining my background and role in Ghana, he very kindly agreed to donate some items to the schools here. To my utter amazement, he was able to acquire the entire first and second levels of STAR, and the FACTER program with 3 training DVDs. I was blown away by his kindness as well as endlessly thankful towards STAR Autism Support for their generous donation.

As mentioned in the previous entry, my time here will now be shared. During the week, I will be doing speech therapy at Coledic (soon to be Multikids) as well as helping with the development of a program called Towards Independence. This is an hour long class everyday geared toward teenagers with autism who are in need of enhancing their life skills. So far we have done lessons on dish washing, going to restaurants, talking on the phone, times of day and telling the time, useful measurements, watering the garden, ect. No only are we teaching the students, it also gives me a chance to teach some of the other teachers here about lesson planning and essential adaptations and/or additions for students with autism in regards to curriculum. This increases the program's sustainability.

Using the STAR program guidelines and training DVDs, I'll be doing staff trainings at AACT every Friday. The first training, next Friday, will be focusing on positive behavior reinforcements, something that I feel particularly passionate about.

On top of all of this, International Autism Awareness Day, the 2nd of April, is only about 9 weeks away!!! This may sound like a long time to start preparing although not to Ghana. Over the next 2 months, I plan to really focus a lot of my spare time (haha) on networking and planning for events.

As for my re-entry back into Ghana... well according to most, I have lost all my tan and apparently ate too many Christmas cookies. Ah, it's nice to be back.

Many thanks for reading.
Casey

P.S. Good luck to the Ghanaian national soccer(football) team as they face Egypt in the African Cup of Nations Tournament finals this Sunday.

A New Year in Ghana

Dear Readers,

I first must apologize for the lapse of time since last writing. I hope the holiday season has brought you and your loved ones an abundance of health and happiness. Since the last update, there have been changes to my role as country director for the Global Autism Project as well as many new developments at AACT.

Back in October and November, AACT had an incredible influx of new volunteers. From US study abroad students to Ghanaian community members, the center was consistently flooded with bodies. For the most part, the increased ratio of caregivers to students was beneficial, especially when focusing on the outcome of new program developments. The most influential volunteer-initiated growth was the introduction of an adapted physical education program. This not only proved to be an essential break and energy release for the students, it also gave the caregivers a chance to teach in a more alternative environment.



My personal favorite addition is swimming Friday's. After a large clean-out session of the center, we found many usefully toys and resources, one of them being an unused, blowup pool. Unfortunately though, due to the size of the pool, only the younger two classes are able to safely use it. Just as every student learns differently, not every teacher is able to thrive in the same environment. Through these added programs, we found newly excelling students and caregivers.

Throughout this fall, AACT continued the ongoing process of fund raising and increasing public awareness. Auntie Serwah and I presented to the 120 member University of Ghana choral group about autism and AACT which lead to them choosing he center as their focus for an annual fundraiser. We set up booths at two different bazaars, one more monetarily successful than the other.

As a representative for AACT, I was also given the opportunity to attend the National Inclusion Forum. This conference brought together teachers, parents, doctors, government officials, and any other professional working in the field of special education. The idea was to learn about current policies and adapt them to accommodate all people with any disability, including learning disabilities. This forum was a first of it's kind and needs to happen more frequently in order to provide these children with the education they deserve.



So what does 2010 look like for the Global Autism Project in Ghana? For the next few months, one of our main focuses will be helping to organize events for April, International Autism Awareness Month. Using previously established connections in conjunction with a newly formed parent support group, increased program development, and heightened volunteer communication we will strive to put autism in Ghana on an international radar.



Over the past 6 months, I have worked hard to really highlight the positive growth within AACT. However, this does not always come easy. Just like anything else in this world, not all of our plans or proposed programs work perfectly. In fact sometimes what works in one environment, will not work at all in another. I have learned a great deal about flexibility, not only within my own expectations but also accepting criticisms of programs, trainings, and the lack of follow-through.

On a more personal level, I was asked to become a part of Ghana's first "all-inclusive" school, COLEDIC [The Communication Learning Difficulties & Counseling Center], as a part time Speech Therapist and Autism Specialist. My presence at this school has allowed me to help AACT increase their involvement with a population of special education advocates in the local community. Originally, my position as the country director of the Global Autism Project in Ghana was going to end in the beginning of December. This has since changed. Thanks to agreements between COLEDIC and GAP, I have been asked to return in mid-January and continue in the effort to help the development of resources available to people with autism in Ghana.



Thank you to everyone who has been reading our blog over the past months and hope you will continue to follow throughout 2010!

Sincerely,
Casey